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      disabledsouthwest.co.uk .. In the news ...

 
 

The European Parliament has declared four actions to improve the lives of people suffering from Arthritis across Europe. The EU are calling for greater importance to be given to all rheumatic diseases in health strategies, faster diagnosis and treatment, and better access to such treatment and information and the EU Parliament can be held accountable by all organisations supporting Arthritic diseases, if it fails to act on the new declaration.

 
 
A "remote nurse" system which allows patients to monitor their own health at home is being tested in Cornwall.

Participants enter their data into the equipment using a touch screen. The information is then sent to community nurses to be analysed.

The county has received more than £5m from the government to pay for the project, which 1,400 patients are expected to take part in. If the scheme is successful there are plans to roll it out across England. The aim of the remote nurse project is to avoid unnecessary hospital admissions.

Elizabeth Stuart is one of the patients taking part in the trial. It makes the patient more independent and able to support themselves

She has diabetes, heart problems and a condition which causes breathing difficulties.

She collects her medical data by putting an electronic clip on her finger. This is connected to a small computer which stores the results and sends them to her community nurse for analysis.

Ms Stuart said she preferred using the equipment to going to the doctor.

"It gives you peace of mind. You know if you're not feeling well that if you do all the stuff on the machine then it goes straight through to the computer and then you get seen to."

Nurse consultant Helen Lyndon says: "The big advantage is that it makes the patient more independent and able to support themselves, and if there is a problem developing we can pick it up early."

Andrew Forrest, from Cornwall and the Isles of Scilly Primary Care Trust, agreed.

"The patient will be able to understand their own condition better... it should affect their quality of life," he said.

Cornwall is one of three areas involved in the remote nurse trial, along with Kent and the London borough of Newham.

 
 
 

    Gerry Griffin

Polio victim swims birthday miles

A polio survivor has celebrated his 60th birthday by swimming 22.5 miles (36.2km).

Gerry Griffin, from Wareham in Dorset, managed 1,450 lengths of Purbeck Sports Centre's swimming pool using just his arms to propel himself.

Mr Griffin contracted and survived the viral infection poliomyelitis (polio) in the 1950s.

"I am immensely grateful to all my friends who supported and encouraged me," he said.

Mr Griffin contracted polio aged two, leaving him completely paralysed. Over the years he regained almost normal use of his upper body but very limited use of his legs.

Pratchett criticises drugs ruling

Author Terry Pratchett has criticised a decision to limit the drug Aricept through the NHS to people in the later stages of Alzheimer's disease.
He told the BBC's Panorama programme the National Institute for Health and Clinical Excellence's ruling "feels like an insult" and needed a rethink.

NICE decided the drug was not cost-effective in the early stages.

Pratchett, who has sold 55 million books worldwide, has PCA, a rare early-onset form of the disease.

He was diagnosed with PCA, which affects the back of the brain and therefore vision and motor skills, in December 2007


Speaking to Panorama for its programme The NHS Postcode Lottery - It Could be You, he said his doctor told him about Aricept straight after he was diagnosed, but she initially said she could not prescribe it for him.

 
 
Charity cycle ride for hospital

Tim Lammin (left), Chris Jack (right) and Georgina Lammin

A charity cycle ride, to raise money for a hospital which treated a girl born with her liver and bowel growing outside her body, begins this weekend.

Georgina Lammin, seven, from Corsham in Wiltshire, had several operations to correct the birth defect.

She spent her first two years on a ventilator, being fed through a tube.

Her father, Tim, and his friend Chris Jack are riding from John O'Groats to Lands End to raise cash for Bristol Royal Hospital for Children.

Excellent care

Mr Lammin said: "Georgina spent four months in the neo-natal unit at St Michael's hospital, part of the children's hospital, and received excellent care both as an inpatient and an outpatient in the years afterwards.

"Raising money through the bike ride is one way in which we can show our appreciation for everything that the hospital staff did for her."

Goergina's condition, known as a "large exomphalos", meant some of her abdominal organs had developed outside her body in the umbilical cord.

Mr Lammin and Mr Jack hope to raise £2,000, which will go towards the hospital's Grand Appeal, which provides additional comforts, services and equipment for patients and their families at the hospital.

They are due to leave John O'Groats on Sunday and plan to cycle between 80 to 120 miles a day, arriving at Lands End on 27 August.

 
  AND FINALLY ...  
 

A handler shows off Arava's wheelchair /PA picsA wheely good idea

A disabled tortoise has found love after being given her own set of wheels.

Arava arrived as a new resident at Jerusalem's Biblical Zoo a few months ago, but staff quickly realised her rear legs were paralysed.

Weighing 25 kilograms, the ten-year-old spurred tortoise wasn't strong enough to move herself using just her front legs.

So, staff built Arava a unique skateboard-cum-wheelchair by strapping a metal board to her stomach with two wheels attached.

Zookeepers reckon Arava's renewed mobility has improved her quality of life no end.

She has even attracted the attention of an amorous male tortoise and the pair have begun mating.
 

 
 

Editor: Alan Dawe - admin@disabledsouthwest.co.uk
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